New book available
back
Anonymity and Research: Health Data and Biospecimen Law
in Australia
Professor D'Arcy Holman explains and critically examines health
data and biospecimen law in Australia relevant to health
research, including the development of
datalinkage systems, biobanks and other
initiatives in integrated health information. The book
sets out the rights, duties and protections concerning health
subject matter that arise in strict common law,
equity and statute, including authorities from the United
Kingdom and other common law jurisdictions that could
have persuasive value.
It proceeds to a legal analysis of the effects of anonymisation
on each of the legal constraints, including commentary on
international variations. The aim is to reveal the state of
Australian law that applies to health data and biospecimens
both before and after a process of anonymisation.
This book offers conclusions on the legality of the use of
personally identifiable and anonymous health data and biospecimens
in Australian research, together with a discussion of the roles
of information governance, technology and law reform in
optimising fair outcomes and resolving areas of
contention.
Anonymity and Research will prove invaluable to health
researchers, law academics and ethicists, and information
custodians and administrators who have an interest in human
research that relies on access to health data or
biospecimens.
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Book details:
ANONYMITY & RESEARCH
By D'Arcy Holman
A$45.00 123 pages
ISBN 978-0-646-57417-2
This book is self-published with the
support of The University of Western Australia.
All proceeds are donated to encourage the professional
development of students of public health in the spheres of law,
ethics and community participation.
For more details contact Margaret Mathews at the
University of Western Australia.
Post: Margaret Mathews
School of Population Health M431
UWA 35 Stirling Hwy
Crawley WA 6009
Email: margaret.mathews@uwa.edu.au
New South Wales Health
