Projects

Use of the CHeReL's linkage services has increased steadily since the unit was established in 2006. A list of completed projects and published research is available.

Projects have been carried out for a broad range of purposes using data from a variety of sources. Some of the research applications of linked data have included:

  • Follow-up of cohorts of people with rare conditions or outcomes reported through population health datasets (eg. infective endocarditis, childhood cancer)
  • Morbidity and mortality associated with infectious diseases (eg. Hepatitis C, influenza) 
  • Follow up of researcher-supplied cohorts to obtain information on service utilisation or health-related outcomes (eg. 45 and Up study, the Australian Longitudinal Study on Women's Health and the HIV Observational Study Database)
  • Case control studies of cancer screening behaviour and outcomes
  • Validation of the accuracy of screening tests by linkage with outcome information (eg. antenatal serum screening and pregnancy outcomes)
  • Incidence of diseases and conditions by the identification of first-time events (eg. first admissions for stroke and heart failure)
  • Reporting of outcomes of health care adjusted for co-morbidity using historically linked data (eg. outcomes for stroke care in NSW hospitals)
  • Studies of health care safety, utilisation and costs (eg. adverse events in hospital, cancer patterns of care)
  • Validation studies of the accuracy of information held in population health datasets
  • Improved ascertainment of health information (eg. Aboriginality, diagnoses) using multiple data sources

Other purposes include population health surveillance and health system performance monitoring, where data linkage has enabled the development and monitoring of new performance indicators and strengthened the capacity of government to develop and evaluate policies and track performance over time.