Skip to content
A NSW Government website

New book available


Anonymity and Research: Health Data and Biospecimen Law in Australia

Professor D'Arcy Holman explains and critically examines health data and biospecimen law in Australia relevant to health research, including the development of datalinkage  systems, biobanks  and other initiatives in integrated health information. The book sets out the rights, duties and protections concerning health subject matter that arise in strict common law, equity and statute, including authorities from the United Kingdom and other common law jurisdictions that could have persuasive value.

It proceeds to a legal analysis of the effects of anonymisation on each of the legal constraints, including commentary on international variations. The aim is to reveal the state of Australian law  that applies to health data and biospecimens both before and after a process of anonymisation.

This book offers conclusions on the legality of the use of personally identifiable and anonymous health data and biospecimens in Australian research, together with a discussion of the roles of information governance, technology and law reform in optimising fair outcomes and resolving areas of contention.

Anonymity and Research will prove invaluable to health researchers, law academics and ethicists, and information custodians and administrators who have an interest in human research that relies on access to health data or biospecimens.


Anonymity ResearchBook details: 

By D'Arcy Holman
A$45.00   123 pages
ISBN 978-0-646-57417-2

This book is self-published with the support of The University of Western Australia.

All proceeds are donated to encourage the professional development of students of public health in the spheres of law, ethics and community participation.

For more details contact Margaret Mathews at the University of Western Australia.

Post: Margaret Mathews
School of Population Health M431
UWA 35 Stirling Hwy
Crawley WA 6009


We pay respect to the Traditional Custodians and First Peoples of NSW, and acknowledge their continued connection to their country and culture.