Data dictionaries

NSW Mental Health Ambulatory Data Collection

The NSW Mental Health Ambulatory Data Collection is dedicated to the assessment, treatment, rehabilitation or care of non-admitted patients. It may include mental health day programs, psychiatric outpatients and outreach services (e.g. home visits). The data records 'contacts' (as opposed to 'episodes of care') by clinicians to a patient.

NSW Admitted Patient Data Collection (APDC)

This collection records all admitted patient services provided by New South Wales Public Hospitals, Public Psychiatric Hospitals, Public Multi-Purpose Serivces, Private Hospitals, and Private Day Procedures Centres.

NSW Emergency Department Data Collection (EDDC)

The Emergency Department collection provides information about patient presentations to the emergency departments of public hospitals in New South Wales

NSW Perinatal Data Collection (PDC)

The NSW Perinatal Data Collection (formerly known as the Midwives Data Collection) is a population-based surveillance system covering all births in NSW public and private hospitals, as well as homebirths.

NSW Central Cancer Registry (CCR)

The NSW Central Cancer Registry maintains records of people with cancer and reports on the impact of cancer in the community.

NSW Mortality Data

Two datasets contain mortality information for deaths occuring in NSW: the Registry of Births, Deaths and Marriages (RBDM) death registrations and the Australian Coordinating Registry (ACR) Cause of Death Unit Record File (COD URF), which also includes Australian Bureau of Statistics (ABS) death registration data prior to 2006.

The 45 and Up Study

The Sax Institute's 45 and Up Study is the largest cohort study of healthy ageing in Australia, established as a national resource to enable world-class clinical, public health and health services research. More than 250,000 men and women aged 45 and over across NSW - about 10% of this age group - were recruited to the 45 and Up Study and will have their health followed over the coming decades.

Its large size gives the Study power to answer research questions quickly and it can address a diverse range of queries, even those relating to uncommon conditions and small population groups. Increased participation from certain groups, such as rural participants and those over 85, has been achieved by oversampling.

The Sax Institute actively encourages the use of the resource by individuals or groups provided ethical and scientific quality criteria are met.

The 45 and Up Study data dictionaries, variable lists and application forms can be found at the 45 and Up Study site.

Please note, access to the 45 and Up Study data linked to other NSW data collections requires an application to both the CHeReL and the 45 and Up Study team. Data may only be accessed via the Secure Unified Research Environment (SURE). For more information or to discuss further, please contact us.

NSW Notifiable Conditions Information Management System (NCIMS)

The NSW NCIMS is a register of diagnoses of certain infectious diseases and adverse events following immunisation, notified to the NSW Department of Health by laboratories, hospitals, medical practitioners, schools, and child care centres.

NSW Perinatal Death Review Database

The Perinatal Death Review Database includes information on about 800 perinatal deaths per year. The information is obtained from confidential reviews carried out by the NSW Maternal and Perinatal Committee, which is a quality assurance committee appointed by the Minister for Health to review perinatal morbidity and mortality in NSW.

NSW Birth Registration Data Collection

The NSW Registry of Births, Deaths and Marriages (RBDM) keeps a permanent record of all registered births.

NSW Pap Test Register

The NSW Pap Test Register collects data on women who have a pap test in NSW and contains details of the woman undergoing the test and test results including Pap tests, cervical histology tests or HPV DNA tests.

NSW Ambulance Data Collections

NSW Ambulance data collections contain operational information from the Computer Aided Dispatch (CAD) system, and also data documented by clinicians in the paper-based Patient Health Care Record (PHCR) and electronic medical record (eMR). Clinical information includes patient vital signs. NSW Ambulance datasets capture information for emergency and urgent episodes of care for NSW Ambulance patients who: were transported to a hospital; were left at a scene following clinician assessment; or, who died at the scene. NSW Ambulance clinicians respond to more than one million emergency and non-emergency cases every year.

ACT Admitted Patient Care

The ACT Admitted Patient Care (APC) data records all inpatient separations (discharges, transfers and deaths) from all public and private hospitals in ACT. Currently, data from Canberra Hospital (Public) and Calvary Hospital (Public) are included in the Master Linkage Key.

ACT Cancer Registry

The ACT Cancer Registry maintains records of people with cancer in the ACT and reports on the impact of cancer in the community.

ACT Emergency Department Data Collection

The ACT Emergency Department Data Collection provides information about patient presentations to the emergency departments of public hospitals in the ACT. 

ACT Perinatal Data Collection

The ACT Perinatal Data Collection (formerly known as the Midwives Data Collection) is a population-based surveillance system covering all births in ACT public hospitals, as well as homebirths. Currently, data from Canberra Hospital and Calvary Hospital (Public) is included in the Master Linkage Key.

ACT Notifiable Diseases Management System

The ACT Notifiable Diseases Management System (NDMS) is a register of the diagnosis of certain infectious diseases and conditions notified to ACT Health by laboratories, hospitals and medical practitioners in the ACT. These notifications are held by the Communicable Disease Control Section at the Health Protection Service.

ACT Birth Registration Data

The ACT Registrar of Births, Deaths and Marriages (ACT BDM) keep a permanent record of all registered births.

ACT Mortality Data

Two datasets contain mortality information for deaths occurring in the ACT: The Registry of Births, Deaths and Marriages (ACT BDM) death registrations and Australian Coordinating Registry (ACR) Cause of Death Unit Record File (COD URF). The ACR COD URF is linked by ACT Health and is available from 2006 onwards.  

The Australian Early Development Census (AEDC)

The Australian Early Development Census (AEDC) is a population based measure of children’s development in their first year of full-time school. The AEDC datasets provide widespread coverage of this group - national participation has been in excess of 96 per cent in each Census undertaken, in 2009, 2012 and 2015.

The CHeReL is an approved linkage unit and as such has already been deemed to meet the minimum requirements for having capacity to undertake linkage and the procedures, protocols and infrastructure to maintain the privacy of AEDC data.

Information on how to apply for linked AEDC data and other resources, including the AEDC Data Dictionary and application forms, can be found through the AEDC website here

Please note that access to the AEDC data linked to other NSW data collections requires an application to both the CHeReL and the AEDC data custodians.

About Us (footer section)

The CHeReL was established in 2006 as a dedicated data linkage unit and is managed by the NSW Ministry of Health.  Other organisations may become members of the CHeReL and are represented on the Data Linkage Advisory Committee.

 

Latest updates (footer section)

12 Oct 2016
Data Linkage Special Interest Group Meeting

23 May 2016
Case Control Workshop

18 May 2016
Introductory Analysis to Linked Data - short Course

11 May 2016
NSW PHSREC - Expression of Interest

02 Mar 2016
Position Vacant - Principal Data Integration Manager

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